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  • Batten Disease Family Association (BDFA) Open site in a new window - Supportive, informative, networking organisation for the families, carers, and professionals giving care to children and adults with Batten Disease.
  • Batten Support and Research Trust (BSRT) Open site in a new window - Building public awareness of the disease.
  • seeAbility Open site in a new window - Charity for visually impaired, blind or partially sighted people with disabilities including learning disabilities and juvenile Battens. Offers supported living, residential, rehabilitation, and day services.
 



 
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